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  • Posted on May 26, 2014 at 11:17 am

As has been the case for the last 15 years since being diagnosed with Cerebral Palsy Maddie has been constantly having physiotherapy, there have been others like speech and occupational therapies, but this has been the one she has needed the most.  She has complemented physio with Hydrotherapy on and off as we could manage it for a number of years now.  We’ve now found a really good therapist by the name of Michael from Gateway Physiotherapy and she’s been going regularly once a week now during the warm months.

Just being in a pool helps but combining this with the warmth of the water at upwards of 300C there are so many more benefits.  It helps to reduce the tone in her muscles, helps with balance and posture, muscle strength, breathing control and weight bearing to improve bone density.  She works really hard during these sessions but at the same time she has a good time.

You know what they say about pictures so here’s a few thousand words…

Stepping with Michael

Kick those legs!










Balancing with Alex








Rolling on the mat








Bunnings Sausage Sizzle

  • Posted on May 26, 2014 at 9:53 am

The sausage sizzle has been done and dusted.  We couldn’t have asked for better weather (well we are in Queensland after all…so another perfect day) and Bunnings was buzzing with people.   Just like 2012 we sold a lot of sausages, we even had to go and buy more after selling the whole  70kg of snags and 45 loaves of bread.  And quite a number of people made extra donations after they bought a sausage, there was even one very generous man there with his kids who put $100 in the tin!!  Peoples generosity never ceases to amaze us.



We also held a raffle to give away some Bunnings vouchers that Maddies Grandparents donated and 1st prize went to Simon who lent us the worlds biggest esky. All the money raised on the day will be going towards Maddies Second Skin postural suit to help with her scoliosis.

A big thankyou to all who helped out on the day.  We couldn’t do it without your very generous support.  We could also not have raised the money without Bunnings, their customers and their staff.  There was actually one young Bunnings team member who took time out of his break to go an put an announcement over the PA system at 3pm to tell everyone we still had sausages cooking.  If you’re at Bunnings buy a sausage, it will surely be going to a good cause.

Botox Treatment

  • Posted on May 25, 2014 at 6:58 am

Most people associate Botox treatment with celebrities and wrinkles but, even though she’s gorgeous and wrinkles are the last thing on her mind, Maddie has now had two Botox treatments in the last 12 months.

The benefits can be extraordinary in people with Cerebral Palsy.  It helps to relax the muscles and with the right dose can allow movement that has either not been possible before or make it easier.  In 2013 Maddie had her first botox treatment in both her upper and lower limbs and a couple of weeks after the effects we dramatic.  Whilst she did experience a little weakness in her legs as she now had to use the muscles to stand instead of relying on them being rigid anyway her arms and hands showed the greatest improvement.  She overcame the weakness in her legs after 2-3 weeks and her progress at gym and physio also improved.

We were at the shops one day and Maddie had a drink bottle that she would normally struggle to pickup but before she even realised she was doing it she had picked it up and started to drink herself.  It wasn’t until she had done it that she realised what she had just done and the smile was priceless.

She even progressed to picking up cups without handles in one hand!!


On the walking side it was hard work learning to use muscles she either never used or had to retrain to be used properly.  It was difficult but she kept at it.

In 2014 Maddie had her 2nd botox treatment only this time, based on the positive effects from 2013, it was in her upper body (chest, biceps and wrist muscles). The intent was to get more of an effect right down to her fingers as last time it did seem to flow down her arms.  This time we didn’t notice as much of an effect which is normal so she had casts done to stretch out her wrists and fingers and basically stretch the muscles, one arm at a time so she still had one to use.  They weren’t the most comfortable things for her to wear as she is used to having both her wrists and fingers bent most of the time (and showers were fun with an arm in a bag).  After a week the casts came off and a splint was made while she was relaxed which she is to wear alternate nights in bed.

Casting after Botox

There is only so much of this toxin that can be administered within a certain period and it does lose it’s effect over time so we have to get the most out of it now.  Click here for some information on botox treatment in children with CP.

We are expecting Maddies next treatment to be in her legs so we can put the emphasis on mobility this time.